cancer, Life in General

An Elk Ate My Brussels Sprouts.

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No, really. I was just bragging to hubby about how smart I was to leave the last few stalks in the garden as it would provide yummy fresh-from-the-earth vegies, when I went to pick some.

Pride comes before the fall. I stood looking at the mess made of all my efforts in confusion. The tops were off every kale plant, the parsley was sheered off at ground level, and the plump little brussels sprout globes were gone from the stalk or badly mangled. ‘What the…?’ I thought. Then I saw the hoofprints. The mesh fencing was still mostly up, but a section had been sort of smushed down to about four feet. Just high enough for an elk or a member of the elephant family of mammals to step over.  That’s when I realized that I probably wouldn’t want to eat the few remaining vegies because they have elk spit all over them.

I don’t know if you’ve ever seen an elk close up, but they are big, really big. Trying to keep them out of any food source is a bit like trying to scare off a mastodon with a broom. Both the extinct mastodons and very much alive elk are both herbivores and neither have particularly vicious reputations, but it’s probably smarter to just let them stomp quietly along their merry way and clean up the wreckage afterwards.

Sounds like a few relationships I’ve had, and, to be fair, the results of a smattering of my own actions. I admit it. But it’s also a lot like what happens in life.

Last week the best friend my husband and I have made up here, died of cancer. To respect the family’s privacy, I’ll call him Bob and his partner Jodi. We were with Bob through the diagnosis and his first treatments, including spending time in Seattle where he had his bladder removed. Then chemo, and when that failed, they turned to experimental immunotherapy.

It worked, the tumors shrank and he was told that though the cancer wouldn’t leave him, he could expect a good five years of reasonable health by continuing that treatment.

Having been on the board of a cancer charity where I worked closely with City of Hope for many years, I know a little something about what people and their families go through with diagnosis and treatment, and the many uncertainties. So, during conversations at that time, we promised our friend that we would be there for his girlfriend, Jodi,  who had only been with him for a single year before she found herself a full time caregiver, a role for which she was not prepared but stepped up to with grace and courage. Though in many conversations she privately confessed to me that she ‘had not signed on for this.’ I understood, it is a huge thing to give up your life to care for someone, especially someone you have only known a year.

Then the unstoppable pain started in one leg, nothing contained it, not codeine, not morphine, nothing. Bob resisted our suggestions to go back to the doctor and I knew that he was afraid of what they would tell him.

And it’s what they did tell him. Two tumors in his abdomen had grown together, and when that happens, the cancer speeds up. He now had a four by six inch tumor pressing on nerves and they gave him three weeks.

I went into neighbor mode. I cooked meals and delivered them, offered to run errands, sit up with him if necessary, anything I could think of to ease their pain. But in this time of covid, there were limited things I could do, and my husband was still recovering from pneumonia, so I had to keep a certain distance. Sometimes when I came to drop something off, I would wave through the window, and on one memorable afternoon, Jodi came flying out of the house putting on her coat and begged me to just take her for a drive for a few minutes.

I took her to one of my favorite spots and parked under the trees in the rain. She talked, and I let her, joined her, and tried to prepare her for what was to come. She’s been through deathbed scenes before, but it’s different when it’s your one and only, I know that, but not from personal experience. I have done home hospice for relatives and friends, but not a partner, so I could only express sympathy and rub her back as she wept. I hope it helped.

I’ll never forget the sound of soft rain on the roof of the car as the windows steamed and grew foggy from the exhales of my weak words of comfort and her gasps of sorrow. It is hard to die, but it might be harder to watch someone you love die. I don’t know yet. I’ve only done the latter, after I’ve been through the former, I’ll let you know.

My husband and I never did get a chance to say goodbye to our friend. Thankfully, though it’s strange to say, he died fairly quickly, slipping into a coma and then his labored breathing stopping at 12:45 on a Wednesday night. I happened to be  awake when Jodi texted me at 5:45 a.m. asking if I could take his daughter, who had come for the end, to the flyaway bus about an hour away so she could get to Seattle and the airport. After a quick discussion, hubby got dressed and left to drive the daughter all the way to the airport, (about two and a half hours one-way but we couldn’t bear the thought of her having to take a bus just hours after her father’s death) and I went to be with Jodi.

I stayed all that day, helping her clean up, crying, listening, encouraging her to sleep. She tried several times to lie down, but would pop back up again when her brain screamed reality at her. Twice she called for me and when I went in, she asked me with pathetic desperation that tore my heart, “He’s not coming back, is he?” I told her no, he wasn’t, but that he would always be with her.

So I took a chair and sat by the end of her bed, propping my feet up close to hers, and we cried more, and laughed in that sad gurgling way one does when one more onslaught of grief will snap you in half. At one point she looked up at me with alarm in her eyes and asked what was wrong with her. She said she felt like someone was tugging at her right sleeve. I explained that lack of sleep will do strange things to your body’s physical sensations, but I also suggested that it might be him, just patting her arm, letting her know it would be all right, and I told her to watch for signs from him, ways that he might try to contact or comfort her. We discussed things that they shared a love of, eagles and the sea both figured strongly in her heart.

At about five o’clock in the afternoon, she finally fell asleep. I stayed an hour, then decided to head home, leaving a note.

You are loved,

You are supported,

I am a phone call away.

She slept for several hours, but woke before dawn. I joined her a bit later and we spent another day just trying to sort reality and absorb the blow. It’s a feeling of total helplessness and the only remedy is to get through it. By the third day I took her out for a drive  just to get her out of the house. As we drove through a dense part of the national forest, an eagle swooped from a tree and paralleled my car for a hundred yards or so before veering off into the canopy, and we held hands and smiled through the tightness of tears in our throats. Now, a week and a half later, she’s doing much better and I’m helping her look for a new place to live. She does not want to stay in his house without him.

Death is like elk or even mastodons in the garden. One long swoop of a tusk churns up everything we’ve planted, every well plotted future meal and harvest. We don’t expect it, we can’t stop it, but we can listen with awe and gratitude to the bellowing in the distance as the herd retreats, leaving us to clean up, to replant, to reflect on the fragility of our human endeavors. All of us are temporary, they seem to say, that’s okay, it all comes back together in the end.

And yesterday, when I went to see my friend, she told me with a smile that she had woken in the night and heard him calling her name, not sadly, not desperately, just to let her know he was there.

I thought about that moment. His strong, loving voice echoing from the distance far ahead, letting her know the way, so that we she can follow and not get lost, and that there is nothing to fear.

Like a herd of mastodon calling across the Pleistocene marshes, ‘We were here, we too passed this way. Do not be afraid.’

So I will replant my garden, I will love and lose and learn until it is my time to pass through those marshes.

And I will not be afraid.

I miss you, “Bob”.

Shari, January 17th 2021

Life in General

Shout, Laugh, Love.

Mein Heir, "Cabaret.
Belting out ‘Mein Heir’,from the hit show “Cabaret.”

My life may not be stress free, but it’s never boring! A couple weeks ago I went to the gynecologist for what I thought was a minor check up, next thing I know I’m being biopsied for uterine cancer. That part wasn’t bad, but between the time the nurse informed me they would do the test and hearing back about two weeks later, (everything is fine) I spent a lot of time thinking about how quickly things can change.

The minute the nurse said, “I need you to sign this release for a cancer screening,” until I got the good news back from the Dr., I could only think of one thing—my girls. What would I do if I were to go through this journey, how will I prepare them for both this stress and the possibility that I wouldn’t be around? I made mental lists, prepared what I would say to encourage them, and how to reassure them that even if I leave them, I’ll be there for them.

Because I believe that. That’s what the novel I’m writing now is about. Of course, these are things we should consider often, it puts a fabulous perspective on those little annoyances in life. People who stalk you on social media, (Hi Rene! Having fun?) too much traffic, money troubles, family squabbles, unstoppable dust, stains in the laundry, the occasional wild fire or mud slide, and my cats yakking up fur balls on the new carpet, none of these seem to bother you as much when you are faced with a potentially life threatening reminder that you are, in fact, mortal.

I like that fact actually, it comforts me often. As it should, because sooner or later, it will be true. On the other hand, as an artist, it puts pressure on. Is what I’m doing worth it? Does it help and change people for the good? Is it…at least entertaining. I consider it a day well spent if I make a lot of people laugh. So, if I can ease a smile out of you, or the waitress, or another patient at the doctor’s office, or even a future reader, I’ve had a good day, as a writer, a mom, and most important, a person.

I was speaking to an author friend who writes wonderful stuff. (Braveheart) He told me that he thought of God watching him over his shoulder as he wrote and it should be worth Him reading. Now, I’m an atheist, but I believe in the creative, collective force of the universe, I believe that death only rejoins us to the whole, but I got what he was saying. I compare it to being able to see your Christmas lights from space or lighting a candle. Sometimes it’s great to create a spectacle for many, and sometimes illuminating a soft smile across the table is enough.

They both count, not one more than the other.

So, laying there on that cozy half table with the stirrups, waiting for the doctor, I had a chance for silliness and took it. When the nurse asked me later if I wanted to take my picture for my electronic files today, I asked, “How about this one? I just took it.” IMG_5113

And she laughed, really hard.

I loved it.

And I live to laugh another day.

Shari, October 20th, 2015

Life in General

The Most Beautiful People.

 

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One of my friends with a kitten.

 

Yesterday I watched a short clip of Dustin Hoffman speaking at AFI about the making of Tootsie. He told the story of asking the movie studio to do makeup tests before they got into production, he said that if he couldn’t look acceptably like a woman, there was no point in making the movie. So they did, and he saw the result, and it was acceptable. Then he went back and said, “Okay, now make me a beautiful woman,” because he thought that was important. If he was going to be a woman, he needed to be physically attractive, right?  The answer was, “That’s as beautiful as you get.” 

And he began to cry, because, as he explained, he realized that he had discounted unattractive women for years, because of some social stereotype that being good-looking makes women valuable, and he knew that he had missed out on a huge portion of love, knowledge, and human connection. 

While this is a wonderful story—and yet another crystal clear example of how we should always put ourselves in another’s shoes before we judge them—it doesn’t just apply to women. 

It applies to anyone that you discount for physical, racial, or sociological reasons. They are not the ones who are lacking. 

Here’s something I learned long ago. Everyone knows something you don’t know. If you will only get past your pre-concieved idea of someone, you will find out that there is more to them than you expected. 

When I was a teenager, one of my best friends had a father who had gone down in a fighter plane in WW2, he was so badly burned that his comrades left him for dead and he laid there for 3 days before a rescue team got to him. The result was that when I knew him, many years later, he had no face. Or rather, his face was scar tissue, with slits for nostrils and the rutted, pore-less skin of a reptile. 

And he was one of the most wonderful people I ever met. Larry Clayton. He was gentle, smart, funny and entertaining. He had lived through so much, given his very identity to defend not only his country, but people who were suffering that he would never meet. He would do anything to help someone out. I’m glad and proud that I knew him and called him a friend. 

How could anyone judge him badly? Yet in our youth and beauty society, it was only his remarkable spirit that kept him from being shunned and ignored. Would you stop to have a conversation with someone who was initially hard to look at? Would you fear your own reaction? 

There are so many children I’ve met through the work with my charity, The Desi Geestman Foundation, who go through terrible physical trials, not the least of which is often the loss of their ‘cuteness’ or attractiveness. This is hardest on the teens, of course. I’ve met charming kids with bald heads riddled with tumors, three year olds whose faces are swollen and covered with fine black hair from the steroids, and quite a few who have lost limbs or even facial features. And I have seen the amazing beauty in them all and been blessed to know every one of them.

I talk a lot about perspective, because I think it colors and changes everything. My friend Paul, who I knew from age 9, when he was diagnosed with bone cancer and lost his left arm, until he died just after his 18th birthday, was the best hugger I ever knew. The last thing the charity did for Paul was to send him with some friends up to Big Bear, because he had never seen the snow, and we knew he didn’t have much longer on this earth. That was our final gift to him and his family. 

Paul had the voice of an angel and we were honored to have him sing at a few of our black tie fundraiser events. To see this cancer- plagued, bald 12 year old with one arm belting out “You are the wind beneath my wings” is a treasured memory that leaves me in tears even as I write this. I will never forget him, or the faces of his pallbearers, all of them were 18 or younger. I know that the lives of his friends who knew and loved Paul through it all are forever changed, they will never be young men and women who judge others by their physical appearance the way most teenagers would. 

That was Paul’s final gift to them. 

It’s a horrible way to learn a crucial lesson, and some small part of me believes that those kids came into our lives to show us what is important. That we don’t control everything, that life and death are neither to be feared. 

It’s those special and courageous people who inspired me to write “Invisible Ellen.” That’s why I think the story of a lost human, ignored and unobserved by society, is important. More than important. Their eviction from society is a loss of spirit and life, of talent and goodness, of potential for friendship, learning and connection that is wasted, not by those who are classified as “different’ or ‘unattractive’ but by those of us who limit our relationships to what is comfortable. We learn so little by embracing only what we know. 

I’ve had quite a few difficult life lessons, and I’m grateful for them all. Of course, I would much rather that Larry hadn’t been so horribly disfigured, or that Paul and the other children never had cancer, but they did, and they do, and I shall not judge the outward effects of their fates, I choose to see the spirit within. 

So, I know this isn’t the happiest blog, but I guess what I’m saying is this—the next time you see someone who is not a person you would go camping with, let’s say, challenge yourself to look them in the eye, to see the person beneath who is just surviving and living like the rest of us, and smile and say hello. Maybe ask how their day is going. And I promise you this. Soon, you will not have to challenge yourself anymore, you will realize that we are all different, we all have struggles, pain and faults, we all have so much to give, we just come in different forms. 

You might learn something you didn’t know, you might even let go of some irrational fear. Freedom is wonderful thing. 

You might even make a friend. 

With love and respect, 

Shari, July 10th, 2013